My life

Lurching from one disaster to another...just a suburban princess trying to get by!



Showing posts with label Mental Illness. Show all posts
Showing posts with label Mental Illness. Show all posts

Thursday, 19 March 2015

My B.A.D

Warning: This post contains details regarding mental health concepts.
  The information supplied is from my personal experience and should not replace professional medical advice.
 
 
Two and a half years ago, after I had my meltdown,  I was eventually diagnosed with Bipolar Disorder. Since that time I've done a fair bit of research, as you do, and have become more and more confused as time went on.
 
We all experience mood fluctuations in response to our everyday lives.  Bipolar is different in that the sufferer can experience wild swings in mood, affecting our work, family and social lives.
 
I was initially diagnosed as Bipolar II, typically characterised by episodes of both hypomania and depression but no manic episodes.  That's where the confusion arises, as I've experienced long periods of mania, not psychotic, but manic nonetheless. Bipolar I disorder is said to be present if one experiences episodes of mania and periods of depression.  Like me.
 
 
Also, the information online regarding my medication states it is for Bipolar I.  As I said, confusing.
 
I recently had a chat with my Psychiatrist about this very thing.  He told me that in Australia we have moved away from the whole Bipolar I vs II definition and now the illness is termed Bipolar Affective Disorder...same thing, different title.
 
He went on to tell me that the distinction between Bipolar I & II is mostly used in the US for the purposes of medical insurance.
 
In Australia the PBS and Medicare refer to Bipolar Affective Disorder as one condition, not distinguishing between Bipolar I and Bipolar II.
 
This made a huge load of sense to me,  as I used to have periods of mania...brilliant fun but destructive, depression...just awful and even mixed affective states where you have both at once...not good.  Now I know it's all one condition I'm less confused. 
 
Now that I am heavily medicated I don't get the mania or hypomania aspects of this illness, but I constantly have to battle the depression. 
 
I wish it was the other way around, life is a lot more fun with a bit of mania.

References:    Sane Australia    Black Dog Institute    Queensland Health


If you are suffering a mental illness or considering suicide,
please talk to someone, see your GP,
 call Lifeline on 13 11 44 or go to your local hospital emergency department.

If you are in physical danger please call 000 (Australia only).

Friday, 13 March 2015

Catching up

Warning: This post contains details regarding mental health and suicide.
 
If you are unable to cope with these concepts or would rather not proceed then please don't read on.


The information supplied is from my personal experience and should not replace professional medical advice.
 
Part 4 of my series on depression & suicide. 
Please find Part 1 , Part 2 & Part 3 via these links.
 
 
It's been a while since I talked about my mental health.  I struggle to construct a sentence let alone a whole blog post.  I blame a combination of brain fog caused by depression and medication...plus ECT, but more on that later.

 
 
2013 saw me in a different hospital for the better part of 3 months again.  I couldn't sleep, if I did I had the most appalling suicide dreams.  I was a mess of anxiety and panic attacks.  Not a good time for me.

I saw a new Doctor, who had some fairly different attitudes to treatment.  He enrolled me in an intensive CBT (Cognitive Behavioural Therapy) course, changed ALL my medication and introduced ECT (Electroconvulsive Therapy) to my regime.  He was not a big believer in Psychologists.

Electroconvulsive treatment (ECT) is a medical procedure that is used to treat a range of mental illnesses, such as severe depression, catatonia and some forms of mania and schizophrenia. The treatment induces controlled seizures in the person by placing small electrodes at specific locations on the head. Read more here

I was initially terrified at the prospect of undergoing ECT, it is never discussed or portrayed in a positive manner and I really knew nothing about the procedure.  My previous Doctor had suggested that it might be a good idea but let me talk him out of it quite easily.


In reality, ECT is the same as any other procedure.  Depending on the hospital, you go into the "day surgery" area, change into your sexy hospital gown (or stay in your own clothes, again, depends on the hospital) then wait.  I have found that there isn't much of a wait as they churn through the patients very quickly, it only takes about 10 minutes each.  They you move through to the procedure room and get on the bed.  The anaesthetist puts in the line, they put the oxygen mask on and it's bye bye time.  You wake up in recovery. Done.

I found that I had a sore jaw the first time I had ECT, but after that no pain, not even a headache.  I have had some memory problems since my treatment.  There are entire weeks that are wiped from my memory and to this day I can't recall TV shows that I've watched.

2014 saw me suffering from depression again so it was back into hospital for a slight medication change and some more ECT, this time it was only for a week.

Since that, I've managed to stay out of hospital for over 12 months, just.  Medication increases and the addition of a Psychologist to my team have helped.  I also sleep, thanks to my medication.

I'm not depressed, I'm not manic, I'm somewhere in between.  The huge amounts of mood stabilisers, anti-psychotics and anti-depressants leave me feeling flat and foggy.  I find it hard to concentrate enough to read or write, engage in craft or other activities.  My Psychiatrist wants me to blog every day, and whilst I'm doing my best it's just not that easy!
 

If you are suffering a mental illness or considering suicide,
please talk to someone, see your GP,
 call Lifeline on 13 11 44 or go to your local hospital emergency department.

If you are in physical danger please call 000 (Australia only).

 

Monday, 23 February 2015

Wow...it's been a while!

How are we all my lovelies?

I can't believe how long it's been since I wrote here.  I have no excuse for my absence other than the fog of mental illness.  I just can't think of anything worth writing or at least that I think people would want to read!

My Psychiatrist wants me to write every day, tells me it will get easier and will be ideal therapy for me.  So ever the compliant patient here I am resurrecting my poor, neglected blog.

Jo xxx

Monday, 4 November 2013

It's been too long!

I was going to say I have no idea where this year has gone, or how I can't believe that I haven't written a post since January, but the sad fact is I know exactly where it's gone and why it's happened.

I've had a hell of a year.

In no particular order, I've had a major surgery causing a dramatic lifestyle change, a serious bout of depression leading to a couple of months in hospital and another month visiting relatives and recovering.  Exhausting.

I need to learn to look after myself better, to recognise when I'm going into a decline before it gets to the point where I have to spend so long in hospital.

I accept that there will be occasions where hospital is necessary, it seems to be the nature of my particular brand of mental illness, but I need to learn to get help sooner, to try to shorten those admissions.  Hopefully I can limit my stays to medication changes only rather than extended stays. 

I have to keep myself busy, building new neural pathways, doing a range of new things (or old things I had stopped doing).

Part of my recovery includes writing, something I haven't been able to do for much of the last year.

So for better or worse, I'm back.

Love Jo xxx



Wednesday, 31 October 2012

Staggering...

These days there is a lot of talk about mental illness in our community.  Ads on TV and the print media, endless online mentions, stories in the news and support from famous faces.

Beyond Blue and Mental Health week have recently received a lot of air-time of late.

Today I attended my weekly meditation class and we were discussing the stress response on the human body, more specifically how GP's deal with it.

Everyday people go to their GP and tell them they are stressed, can't sleep, aren't eating...whatever.  Quite often the doctor will just diagnose depression/anxiety and send the patient away with a prescription for a magic pill.  They take the medication for a bit, hopefully the stress resolves itself and they are "cured".

The statistics and costs of mental health issues on our community are both staggering...so is the ignorance.

One woman piped up in the discussion and said, and I shit you not, "I don't believe in anti-depressants."  This broad and ridiculous comment stunned me.  It's a bit like saying "I don't believe in anti-biotics"!  Of course they aren't right for every situation, but when there is medication available to ease a person's suffering, and it sometimes doesn't get much worse than mental illness, why wouldn't you take it?

I myself am on medication, have been for quite a while, more than likely will be for the rest of my life. I don't just rely on medication though, I am learning as much as I can about my illness, reading everything I can get my hands on. I see a psychiatrist, a psychologist, I attend group therapy and am learning meditation, all to help me manage my condition.

And I think that's the key.  All too often medication is prescribed in isolation or to placate someone, when in reality, stress management, education and in some cases therapy combined with appropriate medication make all the difference.

Jo xxx





Tuesday, 23 October 2012

Side effects


Warning: This post contains details regarding mental health and suicide.
If you are unable to cope with these concepts or would rather not proceed then please don't read on.


The information supplied is from my personal experience and should not replace professional medical advice.
It's a sad fact that the medications used to treat mental illness, as well as most other illnesses I guess but I can't speak from personal experience about those, are riddled with horrible side effects.

Now some people handle medication beautifully, but my observation is that mental illness of any kind generally involves lots of tweaking and experimentation to get to a dosage that is acceptable.

Since I crashed and burned earlier this year I have gone through most of the medications available for Bipolar Disorder.  It turns out that I am particularly sensitive to medication and some of the side-effects are worse than the illness.

I have variously experienced over the last few months nausea, diarrhoea/constipation (TMI I know), dizziness, sleeplessness, grogginess, mania/crushing depression/suicidal tendencies/mixed episodes (a bit of each), rashes, blurred vision, sensitive eyes, sensitive skin, high blood pressure and changes to my liver function tests necessitating a 4 month wait to see a gastroenterologist. 

I have also had fevers, cold like symptoms and my hair is falling out by the handful.  Most worryingly is the crippling joint pain,  all my joints burn and swell, some days it is all I can do to get out of bed.  I feel absolutely exhausted all the time, bone tired.  And then there is the weight gain...I won't even go there!

I should have shares in my local chemist, seemingly every time I see my Psychiatrist there is a new medication, or a new dosage required.  They know me by name.

The blood tests seem endless, tests to see if the medication is at the right level, tests to see what damage it's doing, tests to see why I have been so ill...they think it was my old medication but the symptoms have not subsided after it was changed.

I live in hope that things settle down.  In the meantime I will persevere, continue with medication, doctor visits, therapy, meditation and mindfulness.

It is an exhausting and expensive process, I can only imagine what it is like for people who have lived with this illness for years...


If you are suffering a mental illness or considering suicide,
please talk to someone, your GP, call Lifeline on 13 11 44
or go to your local hospital emergency department.

If you are in physical danger please call 000 (Australia only).


Love Jo xxx

Sunday, 7 October 2012

Mental Health Week 2012


1 in 5 Australians are affected by a mental health condition in some way. 
 
I am.  What about you?

Understanding that mental health issues are a part of everyday life for many of us is necessary to remove the stigma that sufferer’s face.
 
Mental Health Week kicks off today and is all about raising awareness of mental health and wellbeing in the wider community.
This years Queensland theme for Mental Health Week is “Working Toward Wellbeing”.

Exploring the impact that work, paid or unpaid, can have on an individual’s wellbeing and recovery is central to this year’s activities.

So pop along to their website and see what it’s all about!
 
Love Jo xxx

Thursday, 6 September 2012

Out of order...


 
Due to circumstances beyond my control I am currently incapable of putting together a coherant blog post (other than this one of course!).
 
Normal service will resume shortly.

Jo xxx

Monday, 6 August 2012

Stolen

Wow, it's been a while since I posted here!

I would like to say it's because I have been too busy.  

The truth is that I just haven't been able to write since I came home.

I can barely even read.  One of my greatest joys stolen away by my disease.  My concentration and memory are still shot.

But it is coming back, slowly.  I am gathering together a varied list of materials so that I can not only learn about Bipolar, but also how to relax and be mindful.  Lots of reading ahead!

I do cope with life better when I can unload here, but lately the effort has been too great. I am going to try and write every day in the hope it will become easier. 

Until tomorrow

Jo xxx



Tuesday, 10 July 2012

That's not rain...that is freedom!

It weather outside is shit-house.  Fog, rain & wind.  It isn't nice.

Sorry, pic taken from inside through both the screen & the glass, I'm not going out before I have to. I'm not CRAZY!
But I'm going home so I don't care.  I'm out of here.

It's my informed choice this time, and I feel ready.  Last time I "timed out", they don't like you to stay after 35 days as they stop making money from you and the health funds get difficult, hence my release and re-admission a week later - it re-set the payments.  I wasn't ready, just putting on a brave face in the face of not having a choice, on the wrong meds and not well.

I have a long way to go and a lot of work to do I know but I feel positive and happy about it this time.  My medication is pretty close to right and I can see a bit of light at the end of the tunnel, and I checked, it isn't an oncoming train!

So next time we speak I will be at home.  Thank goodness.

Have a lovely day despite the weather!

Jo xxx

Monday, 9 July 2012

Birdies and sirens and firies Oh My!



This morning I was sitting in the courtyard outside my room, diligently practising my mindfulness exercises in a desperate attempt to stop me discharging myself (another story).

Now usually mindfulness is practised somewhere tranquil, you know, a gentle breeze blowing through the leaves, water trickling over rocks, birdies tweeting.  This morning however was somewhat different.

There I was, sitting the the early morning sun, in a place normally so calm.  I started the track - I presently have a terrible memory and the attention span of a gnat so cannot recall or focus on what I'm doing without it- when a fire alarm went off.  I paused the track, patiently waited until it finished, assumed it was a test and when it finished, put it back on. 

Then a light plane flew over, it was tricky but I stayed focused and in the moment.

Then the sounds of sirens in the distance.  I ignored them, they got closer, I tried harder to ignore them, they got louder.

Yes, you've got it.  They were coming here!  So instead of sitting in a serene spot meditating I was in the middle of drama...again.  It all seems to have been a false alarm.

I have chosen to see this as a sign that I really was in the moment and the universe really was making sure of it!  So instead of the second track here I am writing this post, so it can't all be bad.

Hope your day is most excellent!

Jo xxx

Wednesday, 4 July 2012

Still here...

*I found this picture on the internet, attributed to Ikea, no further detail. 
Feels like my life at the moment, a never ending bleakness...I am doing my best to change that!

I'm still here, back in hospital.

Will be a little quiet for a bit while I work on myself.  Medication and doctors can only do so much.

Unfortunately there is no magic pill for mental illness, no quick fix, and I am still coming to grips with the implications for my future.

Hopefully I won't be in hospital as long this time!

Jo xxxx

Thursday, 7 June 2012

A myth...suicide is painless

Warning: This post contains details regarding mental health and suicide. 
If you are unable to cope with these concepts or would rather not proceed then please don't read on.


The information supplied is from my personal experience and should not replace professional medical advice.



Part 3 of my series on depression & suicide.  Please find Part 1 & Part 2 via these links.


Through early morning fog I see
visions of the things to be
the pains that are withheld for me
I realise and I can see...
that suicide is painless
it brings on many changes
and I can take or leave it if I please...



Now let me start with a couple of exceptions.  I am not talking about people who make the decision to die rather that face a more horrifying death, such as those who jump from burning buildings.  I am also not talking about those who make the snap decision (if it could be called that) to die rather than return to prison, or stockbrokers who off themselves after a market crash (though, arguably mental illness could still be involved).  Again, I am not an expert or an authority, just someone struggling with severe depression and, yes, suicidal ideations.

What I am talking about is the process that it takes for someone who is mentally ill to decide that the only way to deal with the pain is suicide.  

Because depression HURTS, it is a pain in your very soul, sometimes quiet and sneaky and at other times tearing into you furiously.  Logic has no place in suicidal thoughts, even though this horrible disease will trick us into believing that it is the only logical course. Whether it is to stop the pain, the burden on others, that we don't matter, that the world is better off without us, that we won't make a mark on the world anyway so don't need to exist.

Whilst your final act may not physically hurt, trust me when I say there is a lot of pain involved in the decision and the planning.  It may take months, days, or even hours, that is irrelevant.

There is regret, despair, pain at the thought of losing loved ones, never again seeing the beauty of a sunrise or a newborn baby, to be transported by a piece of music, whatever is important to you.

But depression is an evil bitch, she can take away all perspective, logic, even the ability to care.  For me, I find a quiet, a certain numbness, what I call "The Calm", which arrives before the plan, way before the act.  It can take may days or hours to make the leap to a plan, and that's what scares me.

I can find myself faking happiness, allowing things that piss me off (and regular readers would know they are many and varied) to slide by me, to stop doing the things I enjoy, withdrawing from people...

...I am learning to recognise my signs, the calm, the loss of any emotion (even though I can fake emotion as well as any Hollywood star) and to ask for help before it goes too far.  That said, even with a plan it is not too late to ask for help, there are many organisations ready, willing and able to reach out and hold you up in your time of need.  You can even change your mind after you have started your attempt if you get that far...

You MUST also think of the people who love you, care about you, who would be devastated, damaged forever by your loss. It could be your partner, your kids,parents, friends, the dog, it doesn't matter.  You must also consider those who must deal with the aftermath of your decision, emergency service workers, medical staff, the poor soul unlucky enough to find you or get in your way...

Suicide is not inevitable, it is a choice, but we must recognise that our mental illness is taking away our most precious possession, our life!  And I for one am not prepared to sit there and let that happen to me without a fight...

...as previously stated, whilst I am not in a good place within myself I am safe and have support, am learning the skills i need to deal with depression when she takes hold and won't let go.

NB: I am referring to the disease of "depression" as female as in my humble opinion, the fairer sex can be far more evil, hurtful and vicious than any man.


If you are suffering a mental illness or considering suicide, please talk to someone, your GP,
 call Lifeline on 13 11 44 or go to your local hospital emergency department.

If you are in physical danger please call 000 (Australia only).

Jo xxx


Wednesday, 6 June 2012

In treatment...

Warning: This post contains details regarding mental health and suicide. 
If you are unable to cope with these concepts or would rather not proceed then please don't read on.

 
The information supplied is from my personal experience and should not replace professional medical advice.

The other day I started a very personal series chronicling my battle with mental illness.  Please refer to it here if you didn't read it yet.

I would like to state that I have never actually attempted suicide, being lucky enough to have a support system in place to help me through, but it was close.  Some would therefore diminish the severity of my illness, this would be a grave mistake.  You have to fight for your life, you cannot hand everything over to others to fix for you, there is no magic pill.  It is hard, tiring, painful and unpleasant to fight this disease, a process I am currently going through.

Today I just wanted to address a few misconceptions I had before entering the mental health ward of a hospital. 

Now you must understand that this is my personal experience, as a voluntary patient in a private hospital.  Whilst I have experienced the local public emergency room in the recent past it was decided at that time that being committed to a locked ward (their option) was not going to be beneficial for me and we made alternative arrangements which did work for a time.  Everyone was kind and professional, there was no sitting in the waiting room, no feeling of stigma, not an experience I want to repeat but not as bad as expected.

Before arriving for admission, I had visions of barred windows, alarms, slamming doors and security guards (imagine Terminator 2).  Of drooling, drugged out, terrifying looking people wandering around randomly waiting for the opportunity to "get me".  To be treated without respect and dignity.

This is the exact opposite of my current experience.  The staff, from the cleaners to the doctors treat you in a friendly, approachable manner.  Don't get me wrong, there are rules and you will get your arse metaphorically kicked if you don't follow them.  But they are common sense, you must get dressed during the day, wear nightwear at night, there is no physical contact with other patients (or the staff, unless strictly necessary), no entering the rooms of others, no passing on of personal details (after all, you don't necessarily want to know these people in "real" life).  We must attend mandatory group sessions, appointments with psychologists and your psychiatrist, you must take your medication, you have to make your own bed, look after your own hygiene etc.  Cleaners with vacuum, empty the bin, clean your sink and the other facilities.  There are laundry facilities if you need to use them.  You are required to eat your meals in the dining room at set meal times, no food in the rooms...a struggle if all you want to do is crawl into a foetal position and cry, but ultimately the best thing for you.

The nurses have seen it all, are onto every trick and often recognise the signs things are going pear shaped before we know it ourselves.  They may not give you what you want, but they will always give you what you need and you have to make the decision to put yourself into their experienced hands for treatment to work.  You might not like it, but you have to trust that they will do their best to help us. 

As I said before though, it is my decision whether I live, and I am fighting to.

There is medication prescribed by your psychiatrist, this is firstly to get you over your initial issues and then to establish an appropriate regime for you to continue at home.  There is always someone to listen to you and do the best they can to meet your needs, but there are a lot of people here, some better, some the same, some far worse and you need to learn patience pretty quickly.

We do have a bit of free time, can use our computers (free WiFi woohoo), watch TV, use our phones, read, craft, go for walks, whatever takes your fancy.  They do need to know where you are and you are not allowed to leave without permission.  There are also recreation facilities, a pool table, music, tv's, computer games, dvd's, board games and books should you wish to use them.

Visiting hours are less than a regular hospital ward, simply due for the need for treatments sessions.  Leave during the week is not strictly permitted but assessed on a case by case basis.  Weekend day leave can be approved by your doctor and even overnight leave if you are preparing to go home.

There is a door on your own room, you can shut it at will.  We have windows looking onto maintained gardens and individual a/c units.  Some lucky bastards get en-suites (as in NOT me) but they are generally reserved for the oldies or those with physical ailments.  I have personalised my room as much as possible, with throws, cushions, my own pillows, pictures and bits and pieces.  It helps to have a retreat that is your "own".

The other patients are normal people, the same as you (and me ;P), we can have a laugh, sometimes a cry, but there is always someone around who knows the ropes and everyone is very kind.  There are the odd dodgy characters who are dispatched "somewhere else" quickly. 

Most of the patients are here for depression and/or anxiety.  Other mental illnesses are generally cared for in a different type of facility.

I have now been here three weeks and am looking down the barrel of possibly another couple, we will see.  At present I am not responding well to treatment and they are re-thinking some of their strategies.  But that's mental illness, it isn't easy, but it doesn't have to be the end.

I hope this has given you a small (well it's bloody long actually) insight into what you might expect should you have to be hospitalised for a mental illness. 

If you are suffering a mental illness or considering suicide, please talk to someone, your GP,
 call Lifeline on 13 11 44 or go to your local hospital emergency department.

If you are in physical danger please call 000 (Australia only).

Jo xxx

Thursday, 31 May 2012

A hard post to write...

Warning: This post contains details regarding mental health and suicide. 
If you are unable to cope with these concepts or would rather not proceed then please don't read on.


The information supplied is from my personal experience and should not replace professional medical advice.


"And now you're back from outer space
I just walked in to find you here with that sad look upon your face
I should have changed that stupid lock
I should have made you leave your key
If I'd've known for just one second you'd back to bother me
Go on now, go walk out the door
Just turn around now
('cause) you're not welcome anymore"



As many of you may know, I am currently residing as a patient of a mental health facility. I have just entered my third week.

Luckily I had options, good private health insurance & excellent medical support. 

I am a "voluntary" patient in that I have certain freedoms, but if I try to leave or hurt myself,  they will move me to a locked facility.

On the 14th of this month I came within a few hours of suicide.  Sheer luck, in that I made an offhand comment to my psychologist in the 55th minute of our one hour session saved my life, seriously. 

I had a plan, I had the opportunity, I was at peace with my decision, I was that close. That one comment, I don't even remember what I said, as I had just bullshitted my way through the whole session knowing it would be my last, put in place a serious of events that saved my life. As in, literally saved it.

I was on a high dose of medication, with regular GP & psychologist visits, but apparently am an Oscar worthy actress and world class liar, no-one knew what was brewing.

This was not my first brush with suicide, a similar thing happened in February of this year, luckily I told my husband and we sought help before it was too late.
 
Unfortunately I wasn't as well as we all thought after that incident.

My particular form of the illness is severe depression and anxiety, including panic attacks and suicidal ideation. Since changing medication I have also developed a serious case of OCD, a real bastard of a thing.

I am not suicidal per se at present, receiving a LOT of medication & therapy, but I don't particularly wish to live.  I am safe where I am, and I feel safe, and am making baby steps every day.  There is a long way to go, often one step forward and three steps back.

This is very hurtful to the people who love me and who I love dearly.  This has nothing to do with any person or any one situation.  It is an illness caused by a chemical imbalance, neglected to the point where I am now. 

Whilst logically I know I have much to live for, no problem in life can't be overcome, that it would damage many people's lives, logic just doesn't have a place in my thinking.

This is the first of a series of posts that I will be running not only chronicling my progress but also some useful resources for those who are either suffering a mental illness or know someone who does.  My humble aim is to educate and change the community's perception of mental illness and it's sufferers. 

Tomorrow I will share a little about my personal experience of the mental health system.

There are many resources available online, through your GP or at your local hospital.

If you are suffering a mental illness or considering suicide, please talk to someone, call Lifeline on 13 11 44.

If you are in physical danger please call 000 (Australia only).

Jo xxx